News
Displaying 281–290 of 504
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Seeing hope: Ledyard nonprofit focuses on rare retinal diseases
NewsSofia Priebe, 17, is legally blind. Her parents have started a nonprofit, Sofia Sees Hope, to raise funds for research into and awareness of the rare genetic disease Leber congenital amaurosis, which causes her blindness.
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First Patient Receives Emerging CRISPR Therapy in Clinical Trial for LCA 10
Research NewsFirst time emerging CRISPR therapy administered inside the human body
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ARVO 2014: LCA Gene Therapy Recipient Featured During Keynote
Research News15-year-old Yannick Duwe transfixed the audience, describing how the treatment enabled him to use a computer instead of Braille, and work much easier and faster at school.
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Researchers Report Six-Month Results from Biogen-Sponsored XLRP Gene Therapy Clinical Trial
Research NewsVision improvements observed with medium and high doses
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Foundation Joins the Institute for Gene Therapies, a Newly Formed Advocacy Organization
Research NewsIGT to accelerate gene therapy development and patient access
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In the Press
People with disabilities are no different from anyone else. We all have strengths and challenges, and we all seek to be fully engaged in society. Treating blind people differently, either as incapable of conducting everyday tasks in life, or conversely, acting as though our ability to conduct even the most mundane chore is remarkable can be discouraging.
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Genetic Testing for Inherited Retinal Diseases through the Foundation’s Open Access Program
Research NewsThe benefits of genetic testing for IRD patients, how to participate in the Foundation’s Open Access program, and what to expect from the genetic testing process.
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Foundation News
My Retina Tracker Program is the highest volume IRD genetic testing program in the U.S.
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7th Annual Retinal Cell and Gene Therapy Innovation Summit
Foundation NewsPlease note that the seventh annual Retinal Cell and Gene Therapy Innovation Summit previously scheduled for Friday, May 1st, 2020 in Baltimore, Maryland has been cancelled.
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VISIONS 2020 Conference registration now open
Foundation NewsThe Foundation Fighting Blindness VISIONS 2020 conference will be held on June 18-20th at the Hyatt Regency Minneapolis.
