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Beacon Stories
Danielle has been navigating her retinitis pigmentosa for half of her life, but she’s never let it hold her back. Her journey with RP underscores the importance of perspective, community of her friends and family’s support, and the relentless pursuit of treatments and cures.
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Eye on the Cure Podcast | Episode 83: Michel Michaelides
Eye on the CureProfessor Michaelides talks about the extraordinary vision improvements for young blind children receiving gene therapy for LCA4
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Honoring the Legacy of Bob Reintsma: A Visionary in the Fight Against Blinding Diseases
Foundation NewsBob Reintsma was fiercely passionate about driving treatments and cures for blinding diseases for most of his life. The Foundation is extremely grateful for Bob’s dedication to our mission and legacy of generosity.
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Luxa Reports Vision Improvements in Clinical Trial of its RPE Stem Cell Therapy for Dry AMD
Research NewsPatients with worse vision at trial enrollment had greatest vision improvements.
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Building Bonds: Joy and Representation in Legos
Beacon StoriesIn her own words, Chloe shares how her bond with her brother Elliot has grown stronger over the years through their shared love of building Legos. Since Elliot’s diagnosis with Stargardt disease, he has faced significant vision loss, but they discovered accessible online Lego instructions, allowing them to continue their cherished hobby. Chloe hopes for a more accessible and understanding world where Elliot and others with vision loss can thrive.
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Neurotech’s Encapsulated Cell Technology Receives FDA Approval for Treatment of MacTel
Research NewsThe technology was previously funded by the Foundation for the treatment of retinitis pigmentosa and dry age-related macular degeneration.
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Eye on the Cure Podcast | Episode 82: Aaron Nagiel, MD, PhD
Eye on the CureDr. Nagiel discusses how gene therapy is administered to the retina, the surgery and recovery for patients, and the vision improvements for young patients receiving LUXTURNA, the first FDA-approved gene therapy for the eye or an inherited condition.
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Adverum Advancing Wet AMD Gene Therapy into Phase 3 Clinical Trials
Research NewsIn earlier clinical trials, the emerging gene therapy greatly reduced the treatment burden associated with injections of approved anti-VEGF therapies.
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LCA4 Gene Therapy Restores Meaningful Vision for Blind Children
Research NewsMeiraGTx hopes to apply for marketing approval in the UK for the gene therapy.
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Pioneering Delivery Strategies for Blinding Diseases Therapy and Inspiring Women in Science
Beacon StoriesInternational Day of Women and Girls in Science is celebrated globally to recognize the critical role women play in science, technology, engineering, and mathematics. To honor this vital day, the Foundation is thrilled to spotlight Dr. Renee Ryals, PhD, a remarkable scientist at the Casey Eye Institute, Oregon Health & Science University.
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