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Displaying 131–140 of 160 stories results
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Original Foundation Advocate Gertrude Weiss Celebrates 100th Birthday
Beacon StoriesGertrude Weiss was one of the early Foundation Fighting Blindness investors and advocates. Diagnosed with retinitis pigmentosa, Gertrude continues to live her life to the fullest. As a longtime friend, the Foundation honored Gertrude on her 100th birthday recently.
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Legally Blind Artist Paul Castle Expresses His Story through Art
Beacon StoriesPaul Castle was diagnosed with X-linked retinitis pigmentosa at the age of 16, but continued to follow his passion for art. Now Paul is a full-time artist and donates 5 percent of his art sales to the Foundation.
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Beacon Stories
Kai Wang was 18 months old when he was diagnosed with the condition. His parents never imagined the extraordinary journey they would take with their son when they learned he had a condition that would render him blind.
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Persevering to Success with the Support of Family, Friends, and Faith
Beacon StoriesA story about living with retinitis pigmentosa.
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Beacon Stories
“I try not to get my hopes up too much, but I never lose hope; I’m determined. I just want to see my son’s face, see him get married, & see my grandchildren. I encourage everyone with a retinal disease to get a genetic test & to never ever give up hope.“
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Beacon Stories
Joe Caruso, founder of FOCUS Wine Foundation, knows life both with and without the ability to see. His first memory is sitting in the waiting room with his mother at the Scheie Eye Institute in Philadelphia.
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Heather Presnar’s Story: Living with Stargardt Disease
Beacon StoriesWhen you’re the catcher, the ball always comes to you. Heather Presnar wouldn’t have had it any other way.
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Sight and Song: The Christian Guardino Story
Beacon StoriesChristian Guardino has been singing for as long as he can remember; it’s the seeing that is something new.
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Artist with Usher Syndrome Excited to Register on My Retina Tracker to Drive Retinal Research
Beacon StoriesArtist Dana Simon describes her experience with My Retina Tracker, a free and secure online registry for people with inherited retinal diseases.
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Two Philanthropic Brothers — Selling Luxury Casual Wear for the Good of Retinal Research
Beacon StoriesThe story of Two Blind Brothers, a luxury clothing line that donates its proceeds to retinal research.
