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June 21–June 22, 2024. Chicago Marriott Downtown Magnificent Mile, Chicago, Illinois. VISIONS 2024, the national conference of the Foundation Fighting Blindness, is a one-of-a-kind event in which individuals who are visually impaired, and their families, hear about exciting advancements in blindness research.
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Talented Singer Overcomes Blindness with the Power of Melodies
Beacon StoriesSarah Hardwig’s love for music began from her earliest days, creating a purpose that would sustain even in the face of adversity. Diagnosed with Leber congenital amaurosis (LCA) before her first birthday, the young artist continues to defy all odds and utilize her voice as a powerful beacon of hope.
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IZERVAY Approved by FDA for Treatment of Geographic Atrophy Secondary to Advanced Dry AMD
Research NewsIn two Phase 3 clinical trials, IZERVAY slowed the growth rate of lesions, the regions of cell loss in the central retina, associated with geographic atrophy (GA)
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Karen Petrou Appointed Foundation Chair Effective July 1, 2024, Upon the Retirement of David Brint
Foundation NewsSpecial Foundation Announcement from Jason Menzo
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Belite Bio Doses First Patient in Phase 3 Clinical Trial for Advanced Dry AMD (GA) Therapy
Research NewsThe company’s emerging, oral treatment is designed to slow vision loss
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Eye on the Cure Podcast | Episode 50: Rachel Huckfeldt, MD, PhD
Eye on the CureJuly 21, 2023. Rachel Huckfeldt, MD, PhD, a clinical researcher and assistant professor of ophthalmology at Mass Eye and Ear, talks with host Ben Shaberman about caring for patients with inherited retinal diseases (IRD), the challenges and opportunities with clinical trials, and the educational and professional journey that led her to the IRD research field.
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PRPH2 and Associated Retinal Diseases (PARD) Science Award
Overview and application instructions for the PRPH2 and Associated Retinal Diseases (PARD) Science Award
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PYC Doses First Patient in Clinical Trial of RNA Therapy for RP11 (PRPF31 Mutations)
Research NewsThe emerging RNA therapy is designed to boost expression of the PRPF31 protein
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Blind Author with Usher Syndrome Ignites the Literary World
Beacon StoriesAt the age of 22, Michael Garrigan received a life-changing diagnosis of Usher syndrome type 2. His vision gradually deteriorated over the years, and by the age of 45, he faced the reality of being legally blind. Determined to share his story and shed light on the capacity to triumph over darkness, Michael penned a remarkable memoir, “Ushered Out of Darkness,” in which he invites readers into his most vulnerable life moments and victories.
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Eye on the Cure Podcast | Episode 49: Alex Cohen, PhD
Eye on the CureJune 30, 2023. Alex Cohen, PhD, a marketing professor with retinitis pigmentosa, talks with host Ben Shaberman about his career in the hospitality industry and launch of Accessible Pharmacy, a comprehensive pharmacy service for people with vision loss.
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