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Displaying 651–660 of 1066 results
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Apr 6, 2020
Carolyn is a business professional and beauty industry leader in Raleigh, North Carolina. In spite of her diagnosis with retinitis pigmentosa, Carolyn pursues exactly what she wants and knows what she is purposed to do in her life.
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Accelerating Treatments for IRDs: 2020 March Progress Report
The Foundation Fighting Blindness is pleased to provide a video recording and full transcript of the Accelerating Treatments for IRDs: 2020 March Progress Report. The presentation took place on March 27, 2020.
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Apr 1, 2020
Interim Results Released for USH2A RNA Therapy Clinical Trial
Suggestions of efficacy observed in 25 percent of participants receiving the treatment
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Mar 31, 2020
The Foundation Fighting Blindness is closely monitoring the COVID-19 situation and its impact on the IRD community.
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Mar 30, 2020
10 Things to Know Before You Fall Victim to a Retinal Stem Cell Scam
An article by David Gamm, MD, PhD, a Foundation-funded researcher at the University of Wisconsin-Madison
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A diagnosis of an inherited retinal disease (IRD) can be challenging for both patients and their doctors. But the Foundation can help eye care professionals provide resources and information to enable patients to better understand and manage their conditions, and potentially qualify for clinical trials of emerging therapies.
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Mar 23, 2020
No Limits for Determined Paralympian Triathlete
Paralympian Elizabeth Baker says that Stargardt disease has made her a tougher person.
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Mar 12, 2020
Seeing hope: Ledyard nonprofit focuses on rare retinal diseases
Sofia Priebe, 17, is legally blind. Her parents have started a nonprofit, Sofia Sees Hope, to raise funds for research into and awareness of the rare genetic disease Leber congenital amaurosis, which causes her blindness.
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Mar 9, 2020
Braydon was diagnosed with an inherited retinal disease at only two years old. Eight years later, after his mom enrolled him in the My Retina Tracker® Program, Braydon learned his disease was LCA.