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Foundation News
The Foundation Fighting Blindness is closely monitoring the COVID-19 situation and its impact on the IRD community.
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10 Things to Know Before You Fall Victim to a Retinal Stem Cell Scam
Research NewsAn article by David Gamm, MD, PhD, a Foundation-funded researcher at the University of Wisconsin-Madison
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A diagnosis of an inherited retinal disease (IRD) can be challenging for both patients and their doctors. But the Foundation can help eye care professionals provide resources and information to enable patients to better understand and manage their conditions, and potentially qualify for clinical trials of emerging therapies.
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No Limits for Determined Paralympian Triathlete
Beacon StoriesParalympian Elizabeth Baker says that Stargardt disease has made her a tougher person.
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Seeing hope: Ledyard nonprofit focuses on rare retinal diseases
NewsSofia Priebe, 17, is legally blind. Her parents have started a nonprofit, Sofia Sees Hope, to raise funds for research into and awareness of the rare genetic disease Leber congenital amaurosis, which causes her blindness.
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Beacon Stories
Braydon was diagnosed with an inherited retinal disease at only two years old. Eight years later, after his mom enrolled him in the My Retina Tracker® Program, Braydon learned his disease was LCA.
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First Patient Receives Emerging CRISPR Therapy in Clinical Trial for LCA 10
Research NewsFirst time emerging CRISPR therapy administered inside the human body
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ARVO 2014: LCA Gene Therapy Recipient Featured During Keynote
Research News15-year-old Yannick Duwe transfixed the audience, describing how the treatment enabled him to use a computer instead of Braille, and work much easier and faster at school.
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The VISIONS Team is working hard to secure the best science, information and lifestyle speakers for the visually impaired community. As more speakers are confirmed, we will list their name and information here, so check back often!
