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A regularly-updated table of inherited retinal diseases and dry AMD clinical trials
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Dec 17, 2019
First Human Study in US for Induced Pluripotent Stem Cells to be Launched for Advanced Dry AMD
Currently there are no treatments for Advanced Dry AMD, also known as GA, which can lead to significant central vision loss
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Dec 17, 2019
Ashlyn Experiences Joy in Day-To-Day Life After Sight Is Restored
Ashlyn’s vision was restored following her treatment with the LUXTURNA gene therapy.
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Dec 16, 2019
First Patient Receives ProQR’s AON Therapy in Clinical Trial for RP Caused by RHO-P23H Mutation
The trial becomes ProQR’s third human study for inherited retinal disease therapies
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Giving through your donor-advised fund (DAF) is a powerful way to help the Foundation Fighting Blindness find treatments and cures to blinding retinal diseases.
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Dec 11, 2019
Families and Scientists Meet to Discuss Therapy Development for People with RDH12 Mutations
Proof-of-concept for RDH12 gene therapy demonstrated in mouse model
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Coping with a Vision Loss Diagnosis
Being diagnosed with an eye condition that causes partial or complete vision loss is a highly emotional experience. Vision loss may come unexpectedly and be frightening. Newly-diagnosed patients frequently struggle with grief and depression, similar to losing a loved one. When managed using healthy coping methods and strategies, this is a natural and normal response to vision loss.
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Dec 6, 2019
Offer support to patients with inherited eye diseases
While genetic testing can direct treatment and identify those at risk, it is important to have support available when patients test positive.
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Dec 6, 2019
Returning the favor: Never too late to give back as a premium surgeon
Whether local or international, through donation of services or funds, there is a way for everyone to give back.
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National Science Call - 12/4/2019
PowerPoint presentation with audio from the National Science Call, recorded on December 4, 2019