Stories

Being diagnosed with anything can be hard, and you certainly will go through a range of emotions. You are not alone. Many have been in your shoes and have dealt with their diagnosis in different ways. Some feel a sense of relief when they can share their stories with others who are going through a similar situation. The Foundation Fighting Blindness is a beacon for those affected by blinding retinal diseases. With our Beacon Stories, we share individual’s journeys with their disease and how their drive fuels them to pursue their passions. Not only do we find their stories aspirational, we believe these individuals are true beacons of strength, champions of courage, and advocates for hope. We hope these stories provide you with light that will get you through the darkness. Collectively, we are stronger together – as a community. Do you have a story you'd like to share with the Fighting Blindness community? Let us know at Marketing@FightingBlindness.org.

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Displaying 151–160 of 160

  • Sep 6, 2013

    Alice Bartlett – Back on That Horse

    His name is Battle. He’s an Arabian, stands more than 15 hands (or 5 feet) tall and weighs 1,000 pounds. He’s been with Alice Bartlett since his birth 26 years ago, and she’s been riding him since he was 2.

    Alice, by the way, is legally blind.

    Beacon Stories

  • Jun 30, 2013

    Taking Their Story of Vision Loss on the Road

    Rollie and Sandie Purvis, parents of two sons with choroideremia, describe their sons’ film project, “Driving Blind.”

    Beacon Stories

  • May 24, 2013

    A Person of Action: One Woman’s Clinical Trial Experience

    By Rich Shea

    Beacon Stories

  • Apr 10, 2013

    Reflections on Life with Usher Syndrome

    Foundation Board Member Moira Shea describes her life with a retinal disease.

    Beacon Stories

  • Mar 22, 2013

    What Losing Vision Has Taught Me

    Author Shawn Maloney describes his journey with RP.

    Beacon Stories

  • Dec 20, 2012

    Curing Blindness, Part 2: Dick’s Story

    Stem-cell-based therapies – including those derived from a patient’s blood or skin – are among the many cutting-edge approaches to treatments the Foundation has funded for decades.

    Beacon Stories

  • Dec 18, 2012

    Curing Blindness, Part 1: Corey’s Story

    How gene therapy restored some of a boy’s sight.

    Beacon Stories

  • May 30, 2012

    Worldwide Vision

    Brooke James has had more than a glimpse of what it means to be blind in certain parts of the world. And she can assure you, it’s scary.

    Beacon Stories

  • Apr 12, 2012

    Making Memories

    The parents of young children affected by retinal diseases walk a fine line – between making the best of a trying situation and preparing for the worst.

    Beacon Stories

  • Mar 19, 2012

    His Mother's Son

    When it comes to describing Eric Fulton, “gregarious” is a more-than-appropriate adjective for the husband and father of two who, fittingly, is also communications manager at the Bethesda-based Clark Construction Group. “It comes naturally to me,” he says of his ability to mix it up with people. “The cause makes it easier. But, otherwise, I’m pretty outgoing; I like to talk to people. It’s what I do.”

    Beacon Stories