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Displaying 161–170 of 188 diseases results
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Foundation News
Known as Pro-EYS, the study will help researchers design clinical trials for potential therapies
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Beacon Stories
Dr. Marciello doesn’t let a Stargardt disease diagnosis get in the way of his twin passions: medicine and baseball.
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Visionary Artist Elijah Overcomes All Obstacles
Beacon StoriesElijah has always had an artist mind, and he hasn’t let his diagnosis with Stargardt disease hold him back from his passion for creating art.
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Rachel Wants to Raise White Cane Awareness
Beacon StoriesRachel Luehrs describes her journey of acceptance.
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The Bergstein’s Are Striking Out Blindness
Fundraiser Success StoriesThe Bergstein family has always been passionate about helping the Foundation Fighting Blindness.
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Foundation News
The program will offer patients with inherited retinal disease no-cost genetic testing and genetic counseling in the United States. Look for updated information on how to participate to be posted in mid-October, with program registration starting shortly thereafter.
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The Show Must Go on Despite Vision Loss Due to Stargardts
Beacon StoriesEmmy Award-Winning Writer and Performer Ellen Gould Weaves her Personal Experience with Stargardts Into Her New Musical, “Seeing Stars”
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Beacon Stories
Shawn was diagnosed with Usher syndrome at a young age. Shawn now stays involved with the blind community and participates in his local blind hockey league. In his own words, he shares his journey at the Toyota-USA Hockey Disabled Hockey Festival.
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How Davida Regained Her Speed with Guide Dog Chubb
Beacon StoriesIn honor of National Guide Dog Month this September, Davida is sharing her experience with the Guide Dog Foundation for the Blind and how she found a perfect match in her new guide dog, Chubb.
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Beacon Stories
Jen Walker was diagnosed with retinitis pigmentosa at 14 years old and didn’t feel ready to meet others with retinal diseases until many years later. Jen now wants to connect with others and raise awareness for the fighting blindness community.
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