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Displaying 21–30 of 188 diseases results
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Nov 15, 2024
Eye on the Cure Podcast | Episode 76: The Lemay-Pelletier Family
Eye on the CureWhen the Lemay-Pelletier family from Montreal learned that three of their four children were losing vision from retinitis pigmentosa, they made the bold decision to spend 15 months traveling the world to give their kids as many visual memories as possible.
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Nov 14, 2024
Research NewsStrengthening research in retinal disease with record-breaking $19.8 million investment in innovative projects targeting vision loss worldwide.
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Nov 13, 2024
Atsena’s LCA1 Gene Therapy Licensed by Nippon Shinyaku for Markets in US and Japan
Research NewsThe companies are planning a Phase 3 clinical trial for the promising gene therapy.
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Oct 30, 2024
BlueRock’s Photoreceptor Cell Therapy to Move into Clinical Trial
Research NewsThe Foundation funded Dr. David Gamm for development of the induced pluripotent stem cell approach to be used in the trial.
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Oct 29, 2024
Kiora Receives Authorization for Phase 2 Clinical Trial of its Photoswitch for Advanced RP
Research NewsThe 36-participant trial will take place at multiple sites in Australia.
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Oct 25, 2024
Eye on the Cure Podcast | Episode 75: Sharon King
Eye on the CureSharon King, co-founder and president of Taylor’s Tale, talks to host Ben Shaberman about her family’s journey when her daughter Taylor was diagnosed with Batten disease.
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Oct 23, 2024
Opus Genetics, Ocuphire Merger to Boost Advancement of Several IRD Gene Therapies
Research NewsMerger will provide additional capital for gene therapy development.
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Oct 21, 2024
Share Your Vision: Heather Edwards
Beacon StoriesHeather Edwards has turned her personal journey with cone-rod dystrophy into a mission to support others facing similar challenges. Despite facing difficulties during her youth, Heather now uses her experiences to advocate for awareness and support for blinding diseases, emphasizing that blindness is a spectrum and each person’s experience is uniquely valuable.
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Oct 11, 2024
Safety Clinical Trial Launched for Usher Syndrome 3 Drug
Research NewsResearchers hope the molecule will slow the vision and hearing loss associated with USH3.
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Oct 7, 2024
Soaring as a Visionary Leader at Southwest
Beacon StoriesJames Ashworth, Vice President of Customer Care at Southwest Airlines, has dedicated his career to the airline industry and his advocacy for the visually impaired, driven by his personal experience with rod-cone dystrophy. His leadership and commitment to supporting the blind and visually impaired community have led to significant contributions, including employment initiatives and technological advancements to aid those with vision loss.