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Displaying 41–50 of 188 diseases results
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Beacon Stories
Maverick, a determined and adventurous 10-year-old, was diagnosed with X-linked retinoschisis (XLRS) at age six, which led his family to find support and resources through the Foundation Fighting Blindness. Since his diagnosis, Mav continues to pursue his passions in sports and outdoor activities, inspiring his family with his resilience and positive attitude.
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Woodburning Gives DeafBlind Artist Purpose
Beacon StoriesKrista Webb has embraced woodburning as a creative outlet to cope with her progressive vision loss due to Usher syndrome. And Krista has built a supportive community on Instagram, where she shares her art and advocates for the blindness community.
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Eye on the Cure Podcast | Episode 70: Karen Petrou
Eye on the CureKaren Petrou, the new board chair at the Foundation, talks to host Ben Shaberman about her vision for the Foundation moving forward. Karen has been an active director on the Foundation’s board for nearly two decades. She is co-founder and managing partner of Federal Financial Analytics, a firm providing analytical and advisory services on legislative, regulatory, and public-policy issues affecting financial services companies. Karen has RP and lives in Washington, DC, with her guide dog, Ike.
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Barry Smith and Emily Harding Smith
Beacon Stories“I have spent a lifetime attempting to prove what I can do, which has allowed Emily and I to be in a place where we can help. Please consider joining us.“
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Blind Guy Biking: Enduring the Trails for Stargardt
Beacon StoriesChris Smith, a mountain bike enthusiast who was diagnosed with Stargardt disease, transformed his bike into a lifeline after losing his driver’s license. Now, 15 years later, he’s tackling the grueling 2,745-mile Tour Divide race while raising funds for the Foundation Fighting Blindness.
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Capturing Life Through A Deaf-Blind Lens
Beacon StoriesBrian Bossert has turned his passion for photography into a successful career. As a commercial photographer and videographer living with Usher syndrome, Brian has a unique perspective and is using his creativity to inspire others as he shares his vision through photos and videos.
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Beacon Stories
In her almost eighth decade of life, Toni Mehler has learned to adapt to the unknown, and she draws from those experiences to embrace her diagnosis of AMD.
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Antabuse Moves into Clinical Trial for People with RP
Research NewsResearchers believe the FDA-approved drug can reduce the hyperactivity of ganglion cells to improve vision.
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Foundation News
Advancing Research Solutions for PRPH2-Associated Retinal Diseases.
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Beacon Stories
Isaiah Bingham is the first legally blind football player in Delaware. At just 14 years old, he’s excelling as a team captain and award-winning athlete and is inspiring others as he advocates for those with disabilities.
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