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Displaying 111–120 of 160
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Mar 23, 2020
No Limits for Determined Paralympian Triathlete
Beacon StoriesParalympian Elizabeth Baker says that Stargardt disease has made her a tougher person.
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Mar 9, 2020
Beacon StoriesBraydon was diagnosed with an inherited retinal disease at only two years old. Eight years later, after his mom enrolled him in the My Retina Tracker® Program, Braydon learned his disease was LCA.
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Feb 24, 2020
Beacon StoriesThis is a father’s story on the night that changed his and his family’s life forever.
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Feb 21, 2020
Beacon Stories“If someone like me, a woman with retinitis pigmentosa and a part-time job, can leave a legacy gift, you can too! And trust me, it feels really, really good to know that part of your life’s work will contribute to something meaningful for future generations.”
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Feb 21, 2020
Beacon Stories“I decided to include the Foundation in my estate plans,” Anne explained, “so that if the time ever comes when my grandchildren, or anyone else’s, experience vision loss, the scientists will have figured out how to help them.”
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Feb 5, 2020
Al Linde “Keeps on Rolling” with Macular Degeneration
Beacon StoriesAl Linde has learned to “just roll with it” throughout his life to overcome many challenges.
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Dec 17, 2019
Ashlyn Experiences Joy in Day-To-Day Life After Sight Is Restored
Beacon StoriesAshlyn’s vision was restored following her treatment with the LUXTURNA gene therapy.
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Nov 22, 2019
Beacon StoriesDr. Marciello doesn’t let a Stargardt disease diagnosis get in the way of his twin passions: medicine and baseball.
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Oct 28, 2019
Visionary Artist Elijah Overcomes All Obstacles
Beacon StoriesElijah has always had an artist mind, and he hasn’t let his diagnosis with Stargardt disease hold him back from his passion for creating art.